HELPFUL RESOURCES & INFORMATION An important part of our mission at Memory Matters is to inform and educate and to provide resources and referrals. We hope your find these resources useful.
Organizations:
Alzheimer's Disease Education and Referral (ADEAR) Center is part of the National Institute on Aging and provides publications and information on Alzheimer's disease, a data base of clinical trials, recommended reading lists and referrals to local resources.
ADEAR Center
800-438-4380
http://www.alzheimers.org
Alzheimer's Disease Cooperative Study is a cooperative agreement between the National Institute on Aging and the University of California to advance research in drug development for Alzheimer's disease and to develop and evaluate clinical trials with the goal of treating and preventing Alzheimer's disease.
Alzheimer's Disease Cooperative Study
858-622-5880
http://www.adcs.ucsd.edu
Alzheimer's Association is a national, non-profit organization offering education and support. Chapters offer referrals to local resources.
Alzheimer's Association
800-272-3900
http://www.alz.org
Alzheimer's Foundation of America's mission is to provide optimal care and services to individuals confronting dementia, and to their caregivers and families through referrals to member organizations dedicated to improving quality of life.
(866) 232-8484
www.alzfdn.org
American Health Assistance Foundation funds research seeking cures for Alzheimer's disease, age-related macular degeneration and glaucoma and provides the public with information about risk factors, treatments and coping strategies. The AHAF website also provides an Alzheimer's question & answer section.
(800) 437-2423
www.ahaf.org
Children of Aging Parents provides information and referrals for nursing homes, retirement communities, elder law attorneys, medical insurance providers, respite care, assisted living, conferences and workshops.
Children of Aging Parents
800-227-7294
http://caps4caregivers.org
"Creating Moments of Joy" -Book by Jolene Brackey
A heartwarming, inspirational book for anyone whose life has ever been touched by Alzheimer's Disease. Provides loving ways to create moments of joy.
1-406-883-3770
http://enhancedmoments.com
Eldercare Locator is a national directory assistance service helping older people and caregivers locate resources. Funded by the U.S. Administration on Aging whose website is http://www.aoa.gov, it also features information on Alzheimer's disease.
Eldercare Locator
800-677-1116
http://www.eldercare.gov
Family Caregiving Alliance offers support services for those caring for adults with Alzheimer's disease, stroke, traumatic brain injuries and other cognitive disorders.
Family Caregiving Alliance
415-434-3388
http://www.caregiver.org
National Institute on Aging is the federal government's lead agency for research on Alzheimer's disease. NIA also offers information about health and aging.
National Institute on Aging
800-222-2225 800-222-4225 (TTY)
http://www.nia.nih.gov
National Library of Medicine is part of the National Institute of Health and is the world's largest medical library with 6 million items and a searchable health information database. A service called MEDLINE is accessible via the internet.
National Library of Medicine
888-346-3656
http://www.nlm.nih.gov
Partnership for Caring operates a hotline dealing with end-of-life issues and provides State-specific living wills, medical powers of attorney, and other information and materials. PFC also provides education and consultation services to medical, legal and religious staff concerning end-of-life decisions.
Partnership for Caring
800-989-9455
http://www.partnershipforcaring.org
Well Spouse Foundation gives support to spouses and partners of the chronically ill and/or disabled to help overcome the effects of isolation.
Well Spouse Foundation
800-838-0879
http://www.wellspouse.org
National Family Caregivers Association offers support to the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one.
National Family Caregivers Association
800-896-3650
http://www.nfcacares.org
Administration on Aging offers information, referral and outreach efforts at the community level to educate older people and their caregivers about benefits and services available to help them.
Administration on Aging
800-677-1116
http://www.aoa.dhhs.gov
National Council on Aging "Benefits Check Up" helps people ages 55 and over to find programs that may pay for some of their costs of prescription drugs, health care, utilities, and other essential items or services.
National Council on Aging "Benefits Check Up"
http://www.benefitscheckup.org
Recommended Reading:
The 36 Hour Day: A family guide to caring for persons with Alzheimer's disease by N.L. Mace and P.V. Rabins, Johns Hopkins University Press, 1999
Alzheimer's: The answers you need by H.D. Davies and M.P. Jensen, Forest Knolls Elder Books, 1998
The Forgetting. Alzheimer's: Portrait of an Epidemic by D. Shenk, Random House, 2001
Research Contacts:
Medical Schools and universities are constantly conducting research and experimentation in various areas of medicine and care including Alzheimer's disease and dementia. Three in our geographic area frequently seek qualified individuals from surrounding areas to participate in research. [use bold for the words participate in research] If you or someone you love are interested in participating in dementia studies, you must determine what research is being conducted and whether the person with dementia qualifies.
Medical University of South Carolina
Alzheimer's Research and Clinical Programs
843-740-1592
Medical College of Georgia
Alzheimer's Research Center
706-721-0211
Duke University
Duke's Family Support Program
888-ASK-DUKE
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